Mapping the Participant Journey: Disability Inclusion in the Research Process

People with disabilities are the largest minority population in the United States, yet they are often excluded from clinical trials, both as participants and as researchers. This Penn State Community Health Equity & Engagement in Research (CHEER) session will feature an interactive exercise led by Willyanne DeCormier Plosky, program director at the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard, that will include:

• Basic information about disability statistics and disability rights.
• How to map out the participant’s (and family caregiver’s or supporter’s) journey from different disability perspectives, for different stages of the clinical trial life cycle.
• Where to find resources to support individual and organizational accessibility efforts.

Register here